"Rare Smile" is a none profit organization on a mission to find a cure for STXBP1. Until we do, we'll be funding and conducting research, sharing expert information, supporting patients, and spreading the word about the findings and possible cure.
We are investing all our resources to find and treat this condition in order to make life a little bit better for those individuals and family struggling with this condition daily.
Rare smile organization was founded by parents for a child with STXBP1 disorder in order to advance research for finding a treatment for children in Israel and worldwide.
The organization is focused on a number of areas including:
Fund raising for research toward a cure.
Raising awareness among the scientific community, the clinical community and the general public.
Collecting relevant information that will contribute to the research.
We are blessed that both family and friends assist with events and spreading the word in order to fund the association . All the income goes to research and development to find a cure.
PayPal / Credit Card donations
For donations via SWIFT/IBAN
Mizrahi-Tefahot Bank Ltd
Branch 532, Park Hamada
Account number 165686
Rare smile (hiuh Nadir) R.A. 580654523
IBAN code - IL500205320000000165686
SWIFT - MIZBILIT
Get in touch with Rare Smile to learn more about our work and how you can get involved.
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